| Topic | Replies | Views | Activity | |
|---|---|---|---|---|
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Welcome To Our New Discourse Site
Were you a member of our old Chiari Online Support Group? Simply LOG IN with your old user name and click on "Forgot password". We will send you a link to claim your old profile. First time visitor? Please go to our M… |
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4 | 4058 | August 22, 2016 |
| 7 1/2 weeks post op |
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22 | 1106 | April 19, 2024 |
| But you don't look sick |
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4 | 93 | April 18, 2024 |
| Does the amount it’s protruding have anything to do with the severity or need to get surgery |
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3 | 236 | February 16, 2024 |
| 17 Year Old Daughter Just Diagnosed |
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5 | 119 | February 13, 2024 |
| Crackling feeling in back of head? |
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15 | 12843 | February 8, 2024 |
| Does surgery get recommended for mild CSF blockage? |
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5 | 186 | February 7, 2024 |
| Question about size of herniation |
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1 | 115 | February 6, 2024 |
| Looking Your Stories - How has this site benefited you? |
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1 | 126 | January 9, 2024 |
| Newly Diagnosed - Does everyone have surgery? |
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86 | 8753 | December 8, 2023 |
| I need prayer |
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0 | 190 | December 6, 2023 |
| Doctor recommended in California, Bay Area |
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3 | 185 | December 6, 2023 |
| Eye pressure |
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3 | 355 | November 24, 2023 |
| My brain does not feel right |
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5 | 231 | November 23, 2023 |
| Absence seizure |
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8 | 349 | November 18, 2023 |
| Intro and a few questions |
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4 | 266 | November 17, 2023 |
| Thank you! and, Driving? |
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4 | 268 | November 16, 2023 |
| Not so common symptoms... do you have? |
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21 | 5518 | October 23, 2023 |
| Feeling discouraged (& in pain) |
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4 | 486 | October 4, 2023 |
| Roller coasters |
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34 | 8866 | September 23, 2023 |
| Filum ligament/ filum terminale sectioning |
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2 | 348 | September 23, 2023 |
| Needing advice |
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5 | 233 | September 5, 2023 |
| Flying home |
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1 | 183 | August 27, 2023 |
| Recently decompressed |
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3 | 203 | August 26, 2023 |
| 📢 Calling mothers of children with rare diseases of all ages |
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0 | 147 | August 12, 2023 |
| Help. Am I crazy? |
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25 | 3234 | July 13, 2023 |
| Great explanation for our lives |
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2 | 245 | July 13, 2023 |
| Hearing issues |
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5 | 199 | July 13, 2023 |
| I feel amazing 16 days post op |
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3 | 267 | February 10, 2022 |
| Cine MRI or alternative tests for CSF flow - UK |
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2 | 182 | June 22, 2023 |