For a long time, I thought I had Myalgic Encephalomyelitis (ME), but I recently learned about the case of Jennifer Brea and others who were initially diagnosed with ME/CFS, only to later discover they actually had CCI.
Here is my story:
At age 12, I was struck in the head by a rock.
Ever since then, I have lived with constant dizziness, cervical (neck) pain, mild photophobia and blurry vision.
At age 19, I developed dysautonomia and began to experience fatigue.
My symptoms progressively worsened, and by age 22 (now I am 23), I became bedbound, with a more pronounced sensory hypersensitivity, cognitive problems, weakness in arms and legs,…
My dizziness intensifies when I lie on my back—unless I support the back of my head (occiput) with my hands—and also when I turn my head to the left.