Welcome
Guidelines, Privacy, and Terms of Service What is different about a Ben’s Friend’s Patient Community. Our Privacy Statement and Terms of Use FAQ FAQ about the Chiari Community New User Help Are you a new user? Don’t worry we will guide you through the following videos. Newbies Guide to Chiari Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information Greetings and Introductions New members, start your experience here. Introduce yourself and share your story. Let us welcome you
| Topic | Replies | Views | Activity | |
|---|---|---|---|---|
|
Welcome To Our New Discourse Site
Were you a member of our old Chiari Online Support Group? Simply LOG IN with your old user name and click on "Forgot password". We will send you a link to claim your old profile. First time visitor? Please go to our M… |
|
0 | 4174 | August 20, 2016 |
|
About Chiari Online Support Group
What is Chiari Online Support Group Chiari Online Support Group is a dedicated patient-to-patient support community for patients and families affected by Chiari. Chiari Online Support Group is powered by BensFriends.o… |
|
0 | 6735 | August 20, 2016 |
| About the Welcome category |
|
2 | 2689 | June 2, 2017 |
| Anxiety & Struggle |
|
0 | 37 | September 15, 2026 |
| 8 months post op desperately seeking hope and/or advice |
|
1 | 66 | September 10, 2026 |
| Decompression surgery was not worth it |
|
2 | 54 | September 9, 2026 |
| Malformation awareness month |
|
0 | 26 | September 6, 2026 |
| Hello from Shawn |
|
1 | 60 | August 30, 2026 |
| Newly Diagnosed - Does everyone have surgery? |
|
87 | 9284 | August 1, 2026 |
| Just an intro from fellow chiarian from UK |
|
10 | 160 | October 20, 2024 |
| Any United Kingdom Warriors Out There 😘 |
|
4 | 596 | October 5, 2024 |
| Neurosurgeon and Ohio |
|
0 | 29 | September 3, 2024 |
| My brain does not feel right |
|
5 | 363 | November 23, 2023 |
| Intro and a few questions |
|
4 | 398 | November 17, 2023 |
| Welcome Andrea! |
|
1 | 216 | February 21, 2023 |
| Community Guidelines |
|
0 | 243 | November 11, 2021 |
| Privacy Policy |
|
0 | 274 | August 18, 2016 |
| Terms of Service |
|
0 | 240 | August 18, 2016 |
| How is Ben’s Friends Different from Social Media and Other Support Sites? |
|
0 | 246 | November 11, 2021 |
| New User Guide |
|
1 | 921 | February 3, 2021 |
| Hello group |
|
1 | 407 | November 17, 2020 |
| Curious about others |
|
27 | 1013 | November 9, 2020 |
| 8 months out after 2nd chiari decompression surgery |
|
3 | 473 | September 17, 2020 |
| Newbie - Charlee |
|
7 | 525 | September 12, 2020 |
| Moving through |
|
1 | 496 | September 8, 2020 |
| Odd seizure not sure what it was |
|
7 | 628 | August 25, 2020 |
| Icp monitoring |
|
1 | 486 | August 15, 2020 |
| Meet Jenny |
|
2 | 456 | August 7, 2020 |
| Living with CM |
|
1 | 500 | June 18, 2020 |
| New to this site |
|
0 | 412 | May 30, 2020 |