I was diagnosed with Chiari and decompressed in 1991. More recently, I’ve started to have new symptoms that I’m pretty confident indicate craniocervical instability. I’m from the States but I now live in the Netherlands, and the neurosurgeons here don’t have experience with either Chiari or CCI and keep telling me there’s nothing wrong with me and it’s all psychosomatic. I’m considering going to Barcelona to see Dr. Gilete, as he says he’s an expert in both Chiari or CCI, but before I pay a lot of money out of pocket, I’m curious if anyone has any experience of him they can share.
I did a quick search on the site and didn’t see his name mentioned, but hopefully someone has seen him
Sharon from ModSupport
Hello, Rachel.
Our son (age 26) had decompression surgery last year in May. We absolutely love his neurosurgeon, Dr. Bogaev, and highly recommend him. He is the nicest doctor we have ever known. Dr. B is an expert in this type of surgery, and stays up to date in all the newest research regarding Chiari Malformations. However, he is in Texas, but has many connections in the field. Maybe if you reach out to him, he can recommend someone in Europe.
Godspeed ~ Sharon