Saw Neurosurgeon Today

I've been out of work since Feb 1st and have had a headache for almost 2 weeks straight now. I can't walk without looking like I am handicapped or drunk depending on your perspective and I have been in constant pain. So today I finally had my appt with my doctor. He does not like what he sees or what I tell him about how I feel. He is sending me for a Cine MRI to compare to the one I had 2 1/2 years ago to see if it is worse. He said if it is worse I will most likely need surgery. In the meantime he is taking me off the hydrocodone I take for breakthrough pain to see if I may be getting rebound headaches and he is putting me on dilaudid. I know all too well how heavy duty this is. i gave it to my daughter during her fight with cancer. I just hope I see some improvement without being totally out of it. I'm just feeling a bit overwhelmed and down. I really want to be working and I can't like this. I am a dialysis nurse. My biggest fear is that I won't be able to return to my job. I'm on my feet for 8 hours a day and do direct patient care which sometimes requires hoyer lift transfers or chair to chair transfers. Physical work that I don't know if I'll be able to do or if I should do anymore. I'm just so frustrated. Why did this have to happen now when things were just starting to get back to normal after losing my little girl last April.


I am very sorry your daughter passed away. That alone is more than anyone should have to endure.

Now your CM is rearing it's ugly head. I also have headaches that lasts for days and weeks at a time. I have been off Narcotics for a while, but for the past couple of weeks have had to take Dilaudid at night for neck and back pain and headaches.This morning I woke up with a Migraine that has only gotten worse throughout the day.It is very frustrating everyone here understands. You are a nurse , so I know you are a good personal health advocate. Talk to your NS and share your concerns and discuss the best treatment options for you.

Please let us know how you are doing.

I will keep you in my Prayers,

Tracy Z.

I’m so sorry for your loss :frowning: I hope your recovery is swift and my thoughts are with you. Girl you deserve some smooth sailing

I am so sorry to hear about the loss of your daughter. I can see why you are so overwhelmed. I will keep you in my prayers!

It does sound like you are seeing a good NS which is a plus. I hope you start feeling better right away!

Jennifer, the loss of your daughter is just breaking my heart! and now your CM flaring up...scary times for sure. No wonder you are overwhelmed and frustrated!!! You'll be in my prayers. Please keep us updated on your cine MRI and if surgery is needed, okay?