Getting tested for POTS

Postural Orthostatic Tachycardia Syndrome is a condition of dysautonomia more specifically orthostatic intolerance, in which a change from the supine position to an upright position causes an abnormally large increase in heart rate.

I just got back from my NL today, and they suspect that I have POTS in addition to Chiari, which is very common together.

How many have been tested for POTS?

Please share your experience with me.

Hi Abby....

I do not have POTS.....What kind of testing do you have to go through for POTS???? When are you having it done?? In thought and prayer.

Love,

Lori

I often get palpatations but not in relation to positional changes which I think is an indicator of POTS. My blood pressure also fluctuates wildly sometimes. For a very long time it was high(POTS I think causes low pressure upon standing with rapid heartbeat). Now my pressure is pretty stable except when I lie down...then it goes very low(80/50). Abby, let me know when your testing is and how it goes.

This is the first I've heard of it. Just wanted to let you know that I'm praying for you.

God Bless, Christie

Abby....

How are you doing with the POTS????

Peace,

Lori

Abby my friend, as always I will be praying for you!

LoriD