I have had these awful head “surges” or like a brain freeze(Which I have never had a real one) or my “head thing” as I call it, since I was about 18? My neck gets so stiff, usually from bad posture, driving, sleeping on a new pillow etc. Sometimes I think it’s also when I am dehydrated or a combination of all of these. My legs ache equally before, during and after the episodes. Lasts 2-7 days? Very dehabilitating. Sound goes hollow or in and out when they are really bad. Awful pain! Anyone else have these symptoms or similarities?
"Surges"is right! I know exactly what you mean. The sound in my head is terrifying and my legs and arms would ache. The electric shock feeling that I felt was incredible.
Wow. Yuck. How often do you get them? Are u a candidate for surgery? Mine is stage 1 only