Hey guys, been away for awhile cause I have been dealing with constant pain in my neck and head. It just won’t stop pounding and thumping. I’ve had non stop pain for about 3 weeks now. I don’t know how I have been making it to work or doing anything else for that matter. I am on vacation this week it couldn’t come fast enough. I really needed the break.
On Monday night I had just about enough as I could take and took myself to the ER. First they gave me valium and it did nothing didn’t even make me sleepy. I told the doctor I was still in pain so next they gave me morphine. I have never had morphine so I was happy to get it cause I thought it would knock out my pain. Well I was wrong all it did was give me a little brain fog and I fell asleep for an hour. The doctor came back to check up on me and as soon as I opened my eyes I could feel the pain. I left the hospital in tears. I just don’t know what to do anymore.
My pcp moved so I am waiting for my records to get to her office she said I should be able to see her some time in September. I will have to ask her what I should do next. i refuse to go back to my old NL he was good for nothing. Going to start over with a NS in Montifiore medical center Bronx,NY. I hope everyone is doing well. Even when I’m not on here posting I try to find time to read post on the site and everyone here is in my prayers.
Hi..
I am so sorry you are dealing with this pain. I am however glad you are starting over with a new NS.....You have a pretty long syrinx too, right???
I hear ya when you say you refuse to go back to the NL...I NEVER went to a NL who knew a thing about Chiari....For me anyway, NL's were just a waste of time, energy and money.
When is your NS appt?? Keep us updated.
Love,
Lori
I use to get demoral shots for tne pain when it was suicidal for me the shot was a brain fog but I slept sometime for two days or more and I told myself as long as I was asleep I didnt feel the pain. Only relief I could get.I knew it was nerve pain cause like you drugs only masked not helped.
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Good luck!!! It is hard to stay positive when you are in pain and nothing helps. I hope your new NS is amazing and can help.
Hi....
You were in my thoughts and just hoping today is better..how are you feeling now????