This Pain in my neck and head is horrible I can barely lift my head, idk what to do, my Primary care Dr doesnât think chiari is painful, sheâs not any help, itâs hard being in this much pain and needing some kind of treatment and getting shrugged off, this exhasberation in symtoms happens every couple of years , theres a lump at the c7 area of my spine , the pressure is pushing up on the back of my head and pushing pain into my left shoulder and arm, I have weakness in my neck it hurts to hold my head upâŚIâm going to go to the emergency room , I canât take the pain Iâm in and I know something is wrong ⌠someone needs to look and see whatâs causing this âŚI need help âŚIâve tried to treat this at home
Lidocaine
Extra strength Tylenol
Ibuprofen
Numbing patches
Icy hot
Heat
Ice
CBD oil
Cannabis salve
Cannabis
Kratom
Nothing is helpingâŚtodayâs my day off but I hope back to work tomorrow
What helped me with my neck and head pain was caffeine, I had 2 cans of Pepsi a day, just please try it and let me know if it works for you too.
@Rebecca_M I know that this post was last year. Iâm hopeful that youâve made progress in finding the right doctors. I am in the exact same struggle with my 11 yo daughter and it is terrible, frightening and frustrating. I just want her to feel like an 11 yo again. I hope you will see this and update us on your experience thus far. Praying that you are well on your way to feeling better now!
Kindest Regards, Angel
Thank you, I did find a neurologist but after all the tests and questions and being bed bound for 5 months, I was told there is nothing he can do and that it wasnât a question of if itâll happen again it will be when⌠thats not what I needed to hearâŚ
Hopefully you and your daughter will get the help needed.
I just had a tumor removed of the left side of my spine. I cannot tell you how much relief it gave me! I am 14 years post decompression surgery, and still have multiple symptoms. The dr just told me last week that my pain and any other symptom is all the brain remembering the pain of chiari and creating anxiety. My response was that the symptoms are still bothering me. The morale of that little story is that the medical world can only help so much. Since tumor surgery last month I have started taking gabapentin, and going to bed every night at the same time, I feel like a new person. Try to remove all the stress in your life, and sleep as much as you can.
Iâll be praying for you
John
Hey John,
Unfortunately I do have to agree with your statement:
And often we have to weigh up the balance of surgery vs symptoms. Some have an expectation of a âfixâ with surgery, but often that âfixâ comes at a cost. Sure the physical cause maybe remedied with surgery and some symptoms can be less, but often the surgical âside effectsâ far outweigh the benefit. I think part of the problem with this is that nobody can give an iron clad guarantee that there wonât be lingering side effects.
I have been to numerous drâs, specialists, neurosurgeons, professors and wizards. Each has had their own opinion on cause, effect and remedy (all of which Iâve trialled, without any great success), but I had one dr put it fairly directly âWell what do you expect⌠âŚyouâve had brain surgeryâ. I was a little a taken back when he said it, but itâs true. I think the hardest part for me was accepting that Iâd exhausted every avenue open to me and âthisâ is about as good as itâs going to get.
Merl from the Modsupport Team