Is there a post for people newly diagnosed like myself? Where do we go from here (other than the nuerosurgeon)?? Things to ask or research? Diet changes that could relieve pressure? Etc?? Thanks. My appointment is on the 19th and since I am laying around with a migraine day AGAIN, it seemed a good time to ask.
Adam,
Thank you for the suggestions! I too use excedrine migraine along with Starbucks Mocho Frappachinos…telling myself the caffine helps (-;
I have to be very cautious with any Meds as I am nursing my baby still. I keep researching the deflame websites trying to see if reducing inflammation in my head would allow any better flow. I did see one other CM gal mention the Paleo diet for that purpose. I plan to try this out soon. I do see a connection between me consuming lots of sugar and the migraines. On days I tired or eat too many desserts, I will have a migraine the next day. The other symptoms don’t seem affected by it.
I guess I have dealt for 25 years, but just didn’t know WHAT we were dealing with. CM seems so much bigge than scoliosisr…life changing…not in a good way. I pray I am strong enough to take this head on (no pun intended…funny though!)
Mommato7
My NL gave me a list of foods that can trigger headaches/migraines…artificial sweetners, caffeine (both can cause chronic rebound headaches) aged cheese, cultured dairy, onions, nuts, cured meats, MSG. These are some I have cut out completely. Go on line and I’m sure you can find a more complete list.
I agree with Twitch…ice pack on the neck and a good pillow. I also do a heating pad on my forehead and face.
Make sure you find out if your NS is a Chiari specialist and how many surgeries he has done on Chiari patients. Remember, the surgery is NOT a cure, just a treatment to prevent your Chiari from progressing. Unfortunately for most of us, your symptoms don’t change much ( I still have 90% of my symptoms 8 years after surgery). But I am glad I did it!
Good luck!
Monique