My symptoms just can’t stay away it seems I take one step forward then three back,the aches and pains are so awful.This makes me wonder if I’m not dealing with another illness also.It seems I lay down at night my bones are on fire not just muscle pain but my bones hurt so bad it feels as if they hurt on the inside.This is different than the chiari,does anyone have these kinds of pains?I noticed a change in some symptoms before the surgery and thought it was just the chiari getting worse but now it’s just not the same as before.Can anyone relate to this?
It’s been almost 6 months and I’ve had some good improvements too.It’s just scary when it feels as if there’s something else to deal with after I’ve waited so long to get to this point,as we know it is what it is.
Thanks for the info.you all are very special to me!
I'm 6 months post-op as well. I have good days and bad. I always feel better than before surgery but some days are better than others. I don't have a lot of deep bone pain but what the above people are saying about Vitamin D and magnesium sounds like solid advice! I am on a gluten free and artificial sweetener free diet and eliminating these things really helped my pain and inflammation levels! Artificial sweeteners always cause bad pain for me as I have a form of inflammatory arthritis.
Good Morning Lynn and other Member's!
@ Lynn -First, I want to thank you for your Time, Support, Kindness and all the information you've shared with me!!
Now that I am 9 months Post - Op , I also have started having the same type of deep bone pain! Across shoulders , neck and upper back but.....
The worst of it seems to start at my knees, runs down to the soles of my feet ( the soles of my feet cramp up like a charley horse with a deep burning sensation} and my knees down to feet also get Ice cold ?
I do have disk issues in my lower back and SI area too, so I guess it's like the chicken and the egg theory :) are the disk so worn that it's causing leg pain or have my knees getting bad causing foot and lower back pain???? and last but not least our good friend Chiari ;)
I've been working with a Medical Chiropractor who is also a Holistic Dr.and My Angel
!She uses a gentle treatment with an Activator, Muscle testing and Cranial Facial treatment ( instead of jerking and cracking ) very intuitive!! Also she won't hesitate to call my GP if I need blood work or is she feels I'll benefit from both ...
Her GG Grandfather was a Chiro when it wasn't excepted well, her Father is a MD.. The knowledge she has from her Ancestor's thats been passed on to her is such a Blessing! I owe her so much word's cant begin to express!!
I may have flare up's and also permanent damage ( because it took so long to diagnose) But I am not stuck just going from my bed to the couch everyday!!
Sorry getting a bit long and off track but just wanted to let all know It might take some searching but there are other's like her although you really have to do some research.. She has me taking natural meds, magnesium, D, Iodine, Hypothyroid , Choline, Omegas and cut white flour , sugar and yeast out of my diet.. I had a 32 oz diet coke everyday and sweet and low my coffee It's been months since I've had a Diet soda or even my big weakness pastry or Ice cream! ( now if I slip and cheat it makes me feel bad and the cravings stopped)
The greatest thing I've been able to do since seeing her is cut back on some pain meds and also get out of the house More
...Like I said, I still have some terrible flare ups but no where near as often or as bad before I went to her..
I too was getting tired of being blown off by MD's and NS if I had new symptom's because they always blamed on Chiari and Pain.... It took 3 years before they finally listed and found out I had a really bad Gall Bladder full of stones..
I apologize if I've taken to much time .. It's just nice to have people that you can talk to about these thing's who really understand what you go through everyday..
Thank you all,
Deb
P.S. please forgive grammar and spelling still having some memory problems...