Hello. I wanted to let everyone with Chiari 1 with syringomyelia of an ongoing study taking place at the National Institutes of Health in Bethesda, Maryland. Participants are followed for 6 years at the NIH hospital. All clinical visits and tests are covered. All surgery, if recommended, all inpatient expenses are covered. And ALL TRAVEL and on-site lodging IS COVERED.
My experience has been very, very positive. I recommend Googling current NIH research studies for Chiari under Dr. Heiss.
Feel free to msg me with questions.