Maybe some helpful useful links from NORD

Good morning my friends and family. I was going through some of my Chiari bookmarks. I know some people have asked prior about transportation and stuff. Here are some links from NORD (National Organization for Rare Disorders)

These links are not in the Resource Tab.

Link 1

Link 2

I have not found any direct links for Chiari or Syringomyelia as of yet but most of us suffer from secondary condition that may or may not be related to our Chiari/Syringomyelia.

I hope someone can find some benefit for these links.