These past few days I’ve been having terrible tingling in my back, it’s pins and needles. It hurt so bad that I started jerking and my boyfriend thought I was having a seizure (I had non-epileptic seizures before decompression). I don’t have it all the time, just different times in the day. I feel nauseated after these “attacks” and I have pain in my upper back which goes into my neck then another headache. Not sure if it’s related to Chiari, I’m just gonna keep praying!
Emmaline- I do/did have TCS. I had surgery for it last April. Yet I’ve heard it could re-tether? I wouldn’t think so soon though!
Abby- I’ve taken topamax for a few months. And yes, I drink plenty of water!