I am almost 6 weeks postpartum. About 4 weeks ago I began leaking clear fluid from my left nostril when bent over. After that persisted for a couple of weeks I looked up my symptoms and found articles on spontaneous csf leak/ rhinorhea. That took me to the er where my concerns were of course dismissed. I followed up with my doctor who consulted with neuro and a head CT was ordered. The head CT showed empty sella syndrome and the chiari malformation. I was admitted and had a head MRI, spine MRI, and MRI with contrast. The MRI revealed that I do have a csf leak into my left sphenoid sinus. I am not dealing ok. I am terrified. I have a follow up with my neurosurgeon on April 8th. Does anyone have any experience with empty sella/ spontaneous csf leaks? I have heard of acquired chiari and I am wondering if in have that or the other type. I am glad I have found this place and I am hoping that it can help me regain some sanity. I have a 5 yr old and a 5 week old that need me… I am able to function with the help of Ativan.
Hello Alanakay and welcome to the greatest support group in the world.
Its a wonderful place to get support and comfort or release some pain by talking to people who know what you are going through.
Go to the Welcome Page, First time user guide, and Resources for you. So you can move around the site with ease.
There people from around the world, who become new friends and come through when you need extra strength on those down days.
There are friends who suffer from the same conditions as you, and there are friend who have some different things going on. But at the base of it all our common illness bring us all together.
Your beautiful children are your blessing and need all your available strength, so reach out to your partner, family and friends and ask for help when you need it.
And this website is so full of answers. If you can't see the question in one of the discussions. Start a new one and you will be amazed by the flood of information that come back to you.
Steph (New Zealand)
hi..
I can see that you have already gotten great input...I really don't have anything I can add..
I want to say congrats on your new baby and let you know that we are here for you and let us know how you are doing.