Why do you feel like you confused and your head feel like it swellings?
I wish i could tell why you feel like this, I have it as well, in fact the last 2 days it has been non stop.I was having the worst time with it today as I was tryig to work. I feel like its getting worse myself. I can just say your not alone, and want to help remind you to not give up. Some times i need someone to tell me this as well. Take care !
Thank you dance mom and you don’t give up either. I live day by day because I don’t know what my day will bring. Just seems it get worse and not better some days.
I feel kind of the same way ... I feel as if my brain has a net over it and that net is getting tighter and tighter and I get a tingly feeling especially in the back of my head, sometimes on one side or the other as well. My ears feel ice cold too... do you ever feel this with your ears? I have just been diagnosed, but realize that I have had these symptoms all my life but thought they were normal since they would be fleeting.This time, it has been 2 months with no relief which prompted an MRI. I am still in shock. I have also noticed that I have slurring and swallowing issues and my lower face is numb like after going to the dentist :(
Yes I do feel like that all the time. I also feel like my head in a fire pit to some times. Yesterday I was hurting in the back of the head and neck and shoulders. Felt like it was swelling too. I felt like screaming with all this pain. The ears some times get cold and my speech is slur some times. My head always in a like it not working at all. I had the surgery and felt fine after it. Then four months later it all came back. My doctor has no appointment to see me but now I’m looking for another one who can help me.
OMG Lula .... it's exactly how I feel ...like a fire pit and also lately I had severe pain in my upper spine between my shoulder blades and thought it was the new bed. Same with the head, and it's so difficult at work to focus. When did you have your surgery? Did you have syrinx too? I am going to get an MRI to see if I have syrinx. They also saw some hypersensitivity spots on my brain which I have to check out to rule out MS, stroke and vasculitis. I also feel like I have to put in extra effort not to drop things and cooking has become such a task because of the extra effort I have to exert to prevent spilling things and making a mess. How old are you? I am 52 but I feel 82. You know the scariest thing that happened to me last week? I was proof reading a letter I typed and the date was on there twice and and I repeated a sentence. It's like I forgot that I had typed it. So scary.
I had decompression surgery done in 2013 but I suffer for years before I finally told them there was something serious wrong. I had to learn to walk again after the surgery. Went threw physical therapy too. I also hurt between my shoulder blades like I doing today and neck. I forget how to do things. I had to not cook much because it came a fight to get cooking done. I’m 48 years old and I take care of eight dogs and a cat. I have two grown children which they don’t like seeing there mother like this. I walked into my kitchen the other weekend to make a milkshake for the family. But I forgot how to make one so my daughter had to make it. There days I forget how to cook and do other thing. Which I know I have done it before. There days I could scream from the pain and there days I have make myself get out of bed. My conceration is very short too.
Lula, you said you suffered for years before you were diagnosed, how long and how severe were your symptoms? Did you always have memory issues or did that seem to develop after the surgery? Have you taken any supplements that have given you some relief? Do you regret doing the surgery?
Started in my early twenties with the nausea and the bad headaches. Doctor then didn’t know why I was having them so they thought it was migraine. It got worse after I was in a car wreck in 2011. The memory problem came after the surgery with me. In one way no I don’t regret having the surgery but the other way I do regret it some. They have tried different pain medicine but I have chronic pancreastis so they can’t give me some medicine to take. I have found one that does give me some releive the name of it is cyclobenzaprine. But one of the side affects are being ill a lot with it. I also lay my head on a chill ow pad for the back of my head for pain. That helps some too.