Is anyone elses head pain in the area where the cerebellar tonsils come through the base of the skull? That is exactly the area where my pain but on the left side. It may just be coincidental. But I thought I'd ask if anyone else has sharp stabbing pain in that area. Thanks!!
yes ma’am…all over…
My surgery is almost a year out and I have pain at the base of my scull.It is more of a aching pain for me it even hurts to touch it if I push in.I’m not sure why this is unless it’s where the nerves were cut that’s the only explanation I can think of.Hope this helps you to know you’re not alone with this.
For sure, that’s the exact spot where it hurts the most.
It could be the nurve being pinched. It can actually be cut through surgery and will actually only effect the back of your scowl 
ask your neurosurgeon
Yep that’s where my pain is! Xx
Be cautious if you are having shocking sensations as that can indicate brain stem involvement.
Thank you for the information everyone! Hugs!!
I feel the most pain in that area as well. I also find that if I put pressure on that area, I feel like I am going to pass out. That is def. my worst area
I am having the same exact problem but no one will listen. Sometimes when I move I get a sharp pain there as well. If I sit back in a chair and pressure hits that area I get dizzy with blurry vision and feel like I may pass out. They keep putting me on anxiety meds and depression meds as if I am making it all up. I am at the point of just giving up and excepting this is as good as it will ever be for me but I am not sure how much longer I can go on like this. I am so fed up with the medical profession I feel like finding a cave and hiding out lol. I didn't make my brain fall out of my skull so how can this be a mental problem? If they don't have an answer then it doesn't exist right?
Sorry that sounds bitter Im just at my wits end.
Nicole
Nicole,
I understand your frustration I’ve been there too,before surgery it was worse.You can’t give up,please keep searching for answers and the right Dr. Have you had decompression? The surgery has been worth the pain of it,not as bad as it sounds.There’s what is called chiari0 have you heard of it,this theory is promising in this field I say this is because my case went on for many years without a dx.You just can’t stop searching,my NS is in Hendersonville, N.C. He is Dr.Rosner and after 27 yrs.I found him myself,the other Dr.s would not tell me he was in the area because they don’t understand what he does.They are far behind these specialist if you want to get better you must find a specialist in the chiari field that has done lots of decompressions each year.I opted for surgery without any second opion from anyone.My chiari was very hard to see on reg mris,the MRI my sugeon used was what is called Rosner prodical MRI he does tilt table and listens to what his patients tells him.Those tests can help him see how things are working with the brain.It was a very scary time for me stepping out on my own knowledge and the knowledge of Rosner.Do lots of research and find a specialist that is the key to getting well,you are in my prayers if you need to know more about Dr.Rosner let me know.
I have constant head pain in that area and I also det these really sharp stabbing pains in my head that makes my whole head twitch. My head pain never ceases...I no longer sleep in bed beecause I have to keep my head elevated...the pain goes doen ,y neck and in between my shoulder blades.