So I finally got a call from the NS and had an appointment set, I remember the day just not the time. had to google a list of NS in my area because I couldn't remember his name. Of course the lady had no clue about anything at all. I asked if he was knowledgeable in Chiari and she said, yes he has had some cases.....what does that mean. I looked him up....6 years in practice.....I worry if he will be competent enough to deal with this.
A little background, I was just diagnosed with CM1, I have no idea to what extent I just know it explains every ounce of suffering I have had since a Motor Vehicle accident 2 and a half years ago. My attorney said it is going to be tough to convince the insurance company that these symptoms are because of the car accident and that I may not be able to use it in the claim. WHAT????? None of this was going on until the accident.
I have head pain, arm and hand weakness/numbness, memory issues...especially short term. I loose my train of thought constantly, and hurt all the time from headaches, skull aches, neck and shoulder pain etc. I cannot even remember the rest of my symptoms right now.
I'm really scared, I have three young children and my husband works for the railroad, and I have no idea what to expect. I live in a small town, and despite being here for a few years I don't know many people. Pain and not feeling good all the time hampers the ability to be a "good friend". Sorry for being so negative I am just a little freaked out right now.
Thanks for reading!