Doing excersise

Hello everyone…

I am now in 2 and a half months post opp… i did my decompression surgery on april 10gh 2018 and i am 25 years of age. Ive been recoving very good symptoms of headachs stiff neck and now i have to undergo a root canal treatment. Im scared it might affect the nerves and ill be back to square one on recovery…

If anyone can help me to understand when is tge right time to get back into my excerise routine again ill highly appreciate it. I love to run, and do full body training its been a while and i feel like im going to loose my body shape aswell as my mind as it was a process of relaxation for me .

Please im looking for advise to when ill be abke to be well me again…

Hi, I have not had the surgery. Everyone has different issues, so different symptoms and results after surgery. Rest and don’t push yourself, especially if you have pain, feel dizzy or lightheaded. As far as a root canal… I need one too. Two dentists recommended pulling it, so not to injure or put stress on my neck and head.
Tina from WI

Dear “T”

Everybody is different in their recovery from Chiari decompresion surgery. Prior to my Chiari symptoms, I was an avid and highly competetive marathon and 10K road racer (in the Pacific Northwest - where races are ALL OVER the place!),

Then, Chiari’s messed things up. My brain stem got permanently pinched from the Chiari ‘squish’. My blood pressure tanks all the time now. Back in 2004, I had to quit my running because any exertion of any kind made my blood pressure bottom out. :man_shrugging:

Since the surgery (in 2012), I have had to go into race walking instead of running - mainly to keep from jarring the spinal cord in any way. And, I still have blood pressure drops. But at least now, I am able to reverse the dropping pressure by either 1] consuming salt, or 2] consuming caffeine. In the mornings, I will usually take my power walking workout right after a cup or two of coffee. Ironically, before the decompression surgery, I HATED the taste of coffee or colas. Never ever drank them. Now - I love them to pieces! Odd. :thinking: But - the caffeine DOES keep my blood pressure up through the entire workout - so it is rather… medicinal. By the grace of God - I’ve become quite good at the race walking!! I’m one of the fastest in the nation - on the Senior Olympics track meet circuit. It took a couple years, though. (My surgery was in 2012, but I started race walking in 2016.) My Central Nervous System didn’t always coordinate well at first. It is STILL slowly healing… and I am slowly slowly getting faster and faster times. Even with age. :blush:

But, the key to getting into exercise is - as my college track coach always said: “LISTEN TO YOUR BODY.” Especially now - with CNS damage. If it feels good, by all means - go out an exercise! if it’s hurting… take it easy. As a competitive athlete, I am trained to push through pain. It is hard for me to take ti easy. But, I am learning to distinguish between muscle pain and nerve pain. If I am pushing a workout way too hard - and my neck nerves start screaming in pain, I have to make myself back off. I don’t wanna - but have to. I hope you are able to enjoy getting back into the world of activity!

Hi beth

Thank you so mych for the inspiring and encouraging words ive been strugglijg but i do want to heal properly. My body is nog used to this “taking iy easy” thing…

I understand i must go slow and work my way but iy always seem tough a few days ago i started yo have trouble breathing my chest feels heavy like someone is squeezing it so im scared to excersise now incase it closes have you had this problem?

But in all factor its going good sttugglimg but never ginving up how did you make it trough im so happy to gear you are still competing in a high level of atletism…

Thank tina

Im hoing tommoro for my treatmemt ill keep you posted

Dear T1562,

I hear you - when you say your body does not want to do the 'taking it easy" thing. Many days, my body doesn’t want to cooperate with other parts of itself; my legs will get all fidgety and want to bust out in a really hard run - but my lungs will not want to - and my CNS starts shooting pains. And, I’m like going… 'Whatever!"

I am very curious how your root canal procedure went.

I just had 3 root canals ‘diagnosed’ this year. These are the first dental appointments I made since my Chiari surgery in 2012, so it has been awhile. I have accumulated 3 root canals over the years. :face_with_symbols_over_mouth: Nuts again! Since this was my first dental work since the surgery, I didn’t know or anticipate any different.

But - WOW! Did I ever have a bad reaction to the Novocaine!!! With the dentist I went to, I had to go in for 3 different appointments and procedures - to the root canal specialist, to the cavity-filler, to the crown-fitter specialist. After each shot of Novocaine, I got really sick! I could barely drive home - and could barely move the rest of the day - like a mild paralysis took over.

The final appointment and shot of Novocaine was the worst and most violent reaction of all. Like you said - the tightening of the chest and couldn’t breath - I started passing out mere minutes after the shot! Everyone in the dental office was freaking out. They didn’t know whether to call 911 or not. They kept asking me if they should continue, or reschedule. I didn’t know either!!! All I knew is that I didn’t want to have to come back and do this all over again! I did my best to 'get tough!" I took another sliver of my Amitriptyline medicine - JUST IN CASE my reaction was nothing more than a panic attack. (I am prone to those as well. Very confusing - panic attacks sure feel like you are really dying! I honestly can’t tell them apart.)

In the end, I forced myself to sit through the procedure - and had two more near-passing-out spells. When I got home and recovered, I did some research.
I THINK the issue - for me - is the epinephrine in the novocaine. Epinephrine is ‘adreneline’ - and for some reason, since Chiaris, my CNS reacts in the extreme opposite from ‘normal’ whenever there is an increase in adreneline/epinephrine. My CNS wants to stop dead. (a month after my decompression surgery, I had to take a ‘tilt-table test’ in which they gave me a shot of epi. That’s the first time I nearly passed into eternity!!! My Blood pressure dived to 40 over 25 - and they almost had to revive me with those shocking paddles.)

In my research, I also learned that the only medication I’ve been on since surgery - 3 mg of Amitriptyline - does the job of BLOCKING epinephrine to the brain! Hmmm. That got me thinking. For some reason, my post-Chiari brain cannot handle adreneline/epinephrine. I don’t know if that’s ‘normal’ for Chiaris or not. Prior to Chiari’s, I had no issues with novocaine. NOW… I will either have to ask for ‘novocaine without epinephrine,’ for future dental procedures, or have the oral anesthesia. Unless I am going to react badly to gas anesthesia as well. I have no idea. In normal people, epi is supposed to give the CNS a boost! Not stop it dead. (In the ER shows, the docs are screaming, “Give me another milligram of Epi!” every time their patient’s heart is stopping. Epinephrine NORMALLY revs things up nicely. But, when is anything with Chiari’s ‘normal’???)

Let me know how you did with your procedures. Again, we all are different - and you may do just fine with epinephrine?!? I’m curious - and always learning about this CRAZY Chiari’s!