I just had my last insurance approved physical therapy appointment yesterday. The therapist suggested I consider/explore disability since the increased stress from work increases my neurological symptoms and the nature of the work is also hard physically. So I am looking for information and experiences with the disability process. I am a young wife and mom so the idea that I am not capable is difficult to grasp. I haven’t yet discussed this with the NL but I’d love to hear anything you all are willing to share.
I work with many Ben's Friends Members on Patient Advocacy issues. I also work with the SSA on SSD Issues. I have been on SSD since 2005. It is hard to admit you are no longer able to work like you have your whole life. Everyone I know on SSD has problems accepting physical and mental limitations. I will be happy to post a link for the application and information about disability benefits and how SSD is approved. Please read everything over and if you have any questions please send me a message. The only problem I had with the the SSD process was when my information was approved the wrong start date was entered so I had to appeal the start date, but have never really had a problem. The worst part is waiting in the SSA office for your personal interview. I also had to see a psychologist requested by the SSA. a MD diagnosed me with an adjustment disorder and since they weren't a Mental Health Provider that diagnosis had to be verified.
Yes, everyone with Chiari chuckles when I tell them about that diagnosis.
I would be happy to talk with you if you have any questions. Please know you aren't alone. Physical and mental stress does make Chiari worse.
When your SSD is approved your minor children will also receive monetary monthly benefits.
I would recommend you discuss it with your PCP first, then your NS. They usually know you better and will give you a better overall health assessment. I love my and several other NS's,but some NS's see not being able to work after decompression surgery as a surgical failure. That is their issue not yours. Chiari is a horrible disorder that can affect every aspect of your life and nothing to be ashamed of at all. I have seen too many Members lose everything post surgically. Some Dr's are not as compassionate as they should be or even fully understands the basics of life after being diagnosed and treated for a CM. It sounds like you have a great physical therapist and supportive family.Just please check into it and ask any questions you need to.