My doctor has ordered a cine MRI. He said this would rule out if you needed surgery or not?
I’m super confused.
Sydney,
Check out www.asap.org. It is the American Syringomyelia and Chiari Alliance Project's page. The site is down at the moment, but there is a patient handbook that you can download and read. There are a lot of resources and information about Syringomyelia and Chiari. It will help you understand and help your family to understand better. It is a trustworthy site for information.
I also have a syrinx along with the Chiari. They are not sure if mine was caused by the blockage of fluid due to the Chiar, if it was there from birth or if it formed on its own. Sometimes the doctors don't know why and don't have the answers to everything. I learned that early on. Keep your head up!
Syrinx is a fluid filled cyst in your sinal cord. Which is why they are probably doing that kind of MRI to check for obstruction. Good luck . I don't have a syrinx but I have Chiari & Decompression surgery June 4th 2012 ..doing okay just living day by day.
Sydney. said:
I have a syrinx. Do you know why people get syrinx? T
Emmaline said:It'll be a regular MRI set up, only they put a pulse ox on your finger. They will get a picture of fluid flow along with your heartbeat. It's a short MRI, but tells them a lot. If the flow is obstructed, or reduced in any way it points you towards surgery...and relief!
Patients your age really heal quite quickly. I'm 56 and it's taking it's time for me, but everyone is different. =)
This is a good thing Sydney!