Chiari syptoms back

I was diagnosed in 2001, I had surgery for a 12-14 mm, however, on e mri they thought it only be 4mm. I had severl comlications after surgery. I ended up with a spinal fluid leak a VP shunt and multiple revisions. After sevetal years of pain and illness the symptoms finally subsided. But now they are back and the drs say there is nothing left to do. Pain medication and rest. I have no energy and when I get up I have dizziness and my heart races . Has anyone else experienced this before.e