Hi all! I came across this in some old paperwork. Dr. John Oro, the neurosurgeon who runs the Chiari Care Center here in Denver, Colorado wrote this poem. I had forgotten all about it, but when I read it again it certainly holds true to what us Chiarians go through. This is a doctor who truly gets it!
Just wanted to share! (the way it is written make it look long )
XOXO Monique
Poem by Dr. John Oro "So I Say"
Another headache
The third today
We all have them
So they say
I’m getting dizzy
My vision blurred
Your getting older
Don’t be absurd
I’m staying home
Too tired to go
Go see your doctor
She should know
Too many symptoms
You must be stressed
Take medication
And get some rest
I cannot think well
Can’t find the words
My memory slipping
My speech gets slurred
We’ll get a scan
Since you insist
If we find nothing
Please don’t persist
Don’t make me laugh
Don’t make me cry
It hurts to strain
I don’t know why
Your scan is fine
By report today
Incidental Chiari
So they say
Incidental
What do you mean
By a doctor
I have not seen
It is anxiety
That makes you so
The world is stressful
I think you know
I pulled away
Gave up, or such
Until the pressure
Became too much
I waded through
The Internet
Fearful of loosing
What I had left
It took some time
To come to know
My brain is hanging
Down too low
With every beat
The fluid flows
Deep in the brain
To the opening below
The rush of fluid
Seeking release
Finds cerebellum
Which makes it cease
The pressure spikes
My head explodes
It makes such sense
Now that I know
Working together
We’ll find a way
To make it better
So I say