Has anyone tried it as a nerve block, if so did it help? I got a nerve block from my pain management specialist and it seemed to have turned my sharp stabbing pains I always have on the right side of my head to dull pains. So I guess that's some kind of improvement. But it hurt like no other getting it and that "relief" only lasted a week at most. She told me the botox should have longer lasting effects, and be less painful. So was just wondering if anyone here as tried it?
Rosey, I just had the botox injections a couple days ago. So far, I am sore at the injection sites and am still having headaches. If you can, send me a message in a week or so and ask me how I am doing then. I would say that I would write to you then, but my memory is not very good these days! The doctor said that it may take about a week or so to start seeing any improvement. But it also may not help much at all. He said that he wants to do the botox again in 3 months even if it didn't help me. I think the problem is that I have headaches all over my head, and they can only do the shots in certain areas. That may make a difference for me. But if it does work, it will at least help with some areas of my head! From everything I have read about it, it can work wonders. So, I would recommend trying it if you can! Just make sure that your insurance covers it, because it is very expensive. Good luck!
I have had several nerve blocks but never with Botox. Mine have always worked very well. Especially my major Occipital nerve blocks. I would ask her why she chose Botox specifically. All mine have lasted several years. The major Occipital Nerve blocks hurt but that is because they have to use such a large needle, go in pretty far and inject a large amount of steroids. The first ones lasted 3.5 years but I was told everyone is different and on some patients they last forever, and some don't work at all. I am sorry your injections didn't last longer. Ask about steroids instead. I have been very pleased and if you have coinsurance they cost less.
Tracy Z.
Rosey,
I had the Botox injections every three months for a couple of years. No they did not take all of the pain away, nothing does for me, at least not any one thing. I have had to take several different things to add up to relief. At first I didn’t think they were helpful and stopped. Then the pain came back. I was then aware of the relief it was giving me. It meant more days pain free and when I do get breakthrough pain, it isn’t as bad as it can get.
I hope that this was helpful. Let me know if you need more clarification on this. Oh, one more thing, yes the injections are painful, at least they were for me. I just lay still with tears running the whole procedure. But that 20 minutes of pain gives me 3-4 months of lesser pain. It is a trade off.
Botox is used for migraine headaches so perhaps they ere thinking that it would work Ina similar fashion, Botox works in a cumulative fashion and you have to get it very 12 weeks. I sometimes had a flare for a few days after I first got the injections. I was getting Botox for my migraines and it really reduced them UNTIL what I think was my chiari worsening then it stopped working. I developed torticolliois primo to them discovering my chiari. They used Botox to try to fix the neck muscles. This wayyyyyy worsened my chiari symptoms as the torticolliois was protecting my brain. I hope it works for you the way it did for my migraines.
I’ve had all kinds of blocks and epidurals and it turns out we often have side symptoms apart from the Chiari and unless it’s a “nerve” condition that you have it’s not going to work.
Have you had your CSF flow tested? A lot of times it’s also inflammation. You may want to watch this video, a great lady on this site just passed on this information and it is exceptional. I hope you Feel better!
Thank you all for you replies. The first injection/block i had was the steroids and she believes that the botox will have a longer lasting affect. But shes referring me to a new neurologist to get those done. (She is a pain management specialist, and my old neurologist sent me to her cause he 'didnt know what else to do'. I'm getting the whole, oh you have chiari go see this Dr so i dont have to deal with you sort of feeling) I haven't had a CSF flow test done, I asked my old neurologist to request a new MRI cause things feel like they were getting worse and more symptoms were coming back and he said i didnt need one and sent me to the pain management doctor, But the new neurologist im going to see is working in a medical college so im hoping to get better help there. Even tho its gonna be a few months before i get to see her, my fingers are crossed for some relief. Stay Strong everyone!!!
Thank you Jozy! That video is very informative. I am really glad that you posted this, Rosey. It is interesting what sue said about it. I am also having a flare up days after the botox. I have been wondering about that. My headaches are actually a little worse than before, these past few days. The actual injections are painful too, just like the occipital nerve blocks. Some areas are more painful than others. But it is supposed to be worth it. I'm not trying to scare you, I just wanted you to know the truth. It may be slightly less pain then the blocks. Good luck!
Hi rosey
I did have the botox injections it was about a year ago but the dr I had only did like half of the vial it did seem to help the neurologist that I have now sail I need 2 units of the botox which is 2 vials I am waiting on them to get the medicine in so I should be having them next week. as soon as I have it I will let you no I was sore at the injection site for a couple of days.
I have been getting Botox for about a yr. it has helped a lot I have from 2-3 migraines a week to 1-2 a month.it takes @ a week to get going but is well worth it. Ask for numbing cream b4 hand it helps esp. In the temple area
Hi Rosey! Yes I have gotten injections from my pain management Dr. & I've received the same kind of relief, which I am SO GRATEFUL for!! I also had 2 different anesthesiologists, 1 of which put me into a "TWILIGHT Sleep" for the procedure! I now Request him for any upcoming procedures!! I'm Amazed @ the Relief I get & Not to Mention "Less Meds" I have to take! Check w/your pain management Dr. & see if you can request an Anesthesiologist to lessen the pain! Good Luck~
I also had my first round of Botox in December, and yes 2 units. I has been amazing for my migraines and daily headaches! For the first time in 5 years I went without a migraine causing me to be in bed or leave work for 4 weeks.. then I had a "mini migraine" exactly one month after the botox but it was bearable, not nearly as bad as usual. I am SOOO very happy I decided to try it. I can only hope they continue to work. If only he could do them all down my back I would be even better lol
They did mine around my left eye (where mine always are the worse) behind my ears, and the sides of my neck. I would say it took me about 4 days to notice a difference in the daily headaches.
Next round is March, I hope it lasts that long, some say it wears off before the 3 months. I am very thankful my insurance covered them 100% or it would have been $2,000!
has anyone ever had botox injections in their legs for spastic muscles. my daughters neurologist has referred us to a specialist to see if she should have this done.
i have not had them in my legs but I did have some in my neck the dr that did only did maybe half a unit it helped for a while cause I have muscle spasms very bad in my neck I am fixing to get 2 units done which it will be done by a different dr that is more experienced with the injections.