Hi all!...Just need a little pep talk I guess...as I said before appointment with another neurosurgeon Fri in TN and I am so anxious. I am anxious that he won't be as specialized as they have said, he will brush me off, etc etc. I am armed with research and information but we all know to some doctors they don't care what you know or have researched. I just don't want another dead end and start the search all over again. It is a financial hardship trying to get answers and solutions. People look at me and think, there is nothing wrong with her, she smiles and looks normal. What they don't know if that I am a master at disguising my pains, headaches, dizziness, etc. Very few see me off balance or holding on to things when I stand....Anyway thanks for listening and as always my prayers are with each of you. Jenn
Jenn, I am so sorry for what you are going through. Unfortunately we all have something that not everyone understands. Did you look at the doctors list on this site? I know how discouraging it is when doctors don't understand or can't help. The financial part of it is mind blowing. It is so expensive getting diagnosed and then having surgery or surgeries if needed. One thing that people here can help you with is recommending doctors. Sometimes you may have to travel to get the proper help. I know it can be a tough journey everyday, but finding this site and people who care, can help. I wish you the best with the new doctor. I will put you in my prayers. Karen
Thanks Beeba, Like you when I go to an appt I wear my makeup, ( I may have been up for hours to try and get it on lol) , but I was raised to look my best. I dressed nice and would be pleasant, but maybe you are right about going in exactly the way I feel. I always think about the fact that people don't think I look like I feel bad all the time, but I have learned how to put on a show. I smile through horrible headaches and neck pain, I hold onto walls around a corner to steady my balance and dizziness before starting to walk and if you don't know me or know me well, you wouldn't notice but inside I am screaming and holding on by shredded fingernails. I think it is unfortunate that I may have to do what you described but it makes sense and at this point I will do anything.