Well I am glad I didn’t have my hopes up too high for the new NL. A brief recap, I waited 4 months to get in to a specific NL, then appointment was canceled the night before because she had jury duty. I rescheduled and waited another month. Only a month because I agreed to see the NP first but they said I would still see the NL before I left. So I went, the NP was a joke. She typed in all my issues and history, did an exam as usual, and then a NL walked in.. but not the one I was supposed to see. Nope some freak doctor. They said the doctor I was supposed to see wasn’t in today. Seriously?!? Any way, this NL asked me “what can we do for you today?” And I told him I just want to feel better, I will try anything at this point, but something isn’t right and surgery did not help. He then said “we do not prescribe narcotics here” huh? What the heck? I said nothing about needing or wanting drugs, I actually told the NP I am already weaning down off of those. He gave me the lecture on how *my* narcotics will cause rebound headaches and migraines. I said “I am not here *just* because of headaches and migraines” and I asked if he or the NP read through all my symptoms that I had to fill out while I was waiting? I asked if the NP told him how I said I can deal with daily headaches and the every 8-10 severe migraine that puts me in bed for days, but the muscle tension and pain every morning and all day long, to where I can’t even hold a dinner plate up, or lift a gallon pitched full of tea is what I need help with. He says “well I could give you some flexoril for that” I asked again “did you even look at my information? I have been on flexoril for years, and I cannot take that during the day, I already break one in half at bed time” He asks again, “so what do you need?” At that point, I cried. And the NP said “she said she is interested in Botox” and he says “we can set her up with a consult for that” NL left the room, and I cried, NP said nothing except that they would set me for a consult at the front desk.
Needless to say it wasn’t a good appointment. Oh and some where in there she the NP did mention a TENS Unit, but since I said I do not have time for PT, they would not write a prescription for one?! I told her that I have two kids with special needs, therapies and tutoring for them weekly, and add on the fact I drive around 400-500 miles per week, and I am already gone from 6:30am until some times 8pm at night. She said I could purchase one online… Which I know I can, and I have been looking but I have no idea which one is a good one and worth the money. Do I need an expensive one? Do I need one with the EMS option? Any suggestions for one?
So, yes I am going back… on Thursday morning actually, for the Botox consultation which is with a different NL there. I said I will try anything and I will. And if he doesn’t think Botox will help me, then I will make another appointment to see the NL I was originally supposed to see that I have heard great things about. But this is my last round with neurologist. He did not feel my muscle tension, did not ask any questions, did not look at the MRI’s I brought in, just asked what I wanted. I know the botox won’t help with the muscle tension but maybe it will with the headaches and migraines?! Although I would love to not have the extremely painful muscle tension and trigger points. But when I asked about trigger point injections they basically blew that off?!? So not sure why! If I don’t get any help or suggestions after this, my next plan is to just go to a pain management doctor. Which I have found one and the process to get an appointment is quite lengthy and a lot of stuff to provide so that won’t be anything quick either. But in the long run I am sure it would be worth it. I am tired of crying every night and my husband doing everything in the evening and weekends because I physically just can’t. And I never thought this would happen but I did find a company to clean our house.. so now we are paying for some one to clean our house. I am a little OCD and stuff has to be clean, and always is clean but I can’t keep up with it any more.
We are also in the process of getting a hot tub because it seems a heating pad and hot bath helps the most with the pain. It can’t get here soon enough!