Since my diagnosis last week I have been having to explain my diagnosis, and the new book holders that accompany me to class. A student in my class saw me carrying a pillow into my office....had to explain why I had to take naps. Often times the look on their face when I explain is one of disbelief, horror or pure sympathy....but they even admit most of the time they have no idea what I am going through. They also say something like "Wow, that's awful...I feel for you..." I have friends who offer to go out to bars (they forget I can't drink, it makes my heaches worse) or want to go to dinner late in the evening (when I am exhausted). If only they did understand....but I wouldn't wish this on anyone...
Which is why is why I am SO grateful for all the wonderful discussion on here. For one part of my day when I want to discuss my Chiari, I can talk to people who really understand, that I can ask questions of advice to, and share in our pains, successes, and challenges in life. For each of you I am grateful. Thanks for the support! This has been a blessing for me this past week!