Welcome to Ben’s Friends Julie! That’s a very creative name (positive spin on a titanium plate) :).
After reading your profile, I can empathize with your frustration - the fact that you were given such a prognosis and so little follow up seems extremely disconcerting. They were clearly wrong, and now you find yourself in a confused place.
I hope you use this community as a chance to speak to other patients about your condition. Theres no need to suffer in silence when there’s so many people here you can relate to. Please get involved in the discussion, ask questions and make comments - the community is here for you!
Once again, welcome to Ben’s Friends Julie.