Lets all give a warm welcome to Craig Carpenter from Maine!
Craig, it seems like you are in a tough place - you got the diagnosis that you wanted, but it seems like there is no solution. I know that you will find lots of patients on this forum that are going through similar things. In fact, it seems like a sort of trend around here that most people are not getting the treatment that they want.
I want you to get involved in this community and speak to others. Ask questions and get involved in the discussion because you never know, there may be patients on here that may be going through the same thing as you. You can find help or even help others!
Once again, welcome to Ben’s Friends Craig!