I have a question. Walking....If i have to walk any kind of distance especially on campus or have to go to store with the kids walking seriously hurts. I thought i was just because I've been sick lately but now that the pneumonia is gone (i think) the walking isn't getting easier....i feel like a total failure with all of this and it seems the kids are starting to get really pissed about it all. Everything in house seems to center around migraines, unable to walk, not being able to lift....list goes on....
I am sorry to hear about your struggles.I can't imagine having pneumonia on top of Chiari. I have a very hard time walking. It's very difficult to lift my feet most days and my leg muscles burn and are weak. I have kids and they get very frustrated also even though they know I'm not doing any of this on purpose. When one person in the family has Chiari it feels like the whole family does. It may be that you are just having a hard time recovering from the pneumonia and the fatigue is worse because of the Chiari. Be kind to yourself I am sure that your kids know that you are not doing this on purpose and you would understand and be compassionate to someone else that was struggling you are. I know that's easier said than done. Sometimes the guilt keeps me up at night. We all find ways of rearanging our lives to accommodate our ever changing symptoms. Sometimes pushing yourself past the point of what your comfortable with makes your symptoms worse. The days you feel good you want to do all the things that your not able to do when your feeling bad and then you over due it and suffer worse because of it. I am saying a prayer for you and I hope you feel better soon.