hi, just wondering if any one else is feeling very tired and exhausted? Im waiting for surgery and am finding that im getting tired very easily. Work is getting harder by the day. Just want to know if any one else feels the same?? Cheers :)
Feret,
Exhaustion is one of the worst things about Chiari. I didn't know for years that it made you tired. I thought I was just lazy and I beat myself up a lot over it. I drink big cups of coffee when I have to do anything to try and combat it.
Wendy
thank goodness some one else feels the same. I thought i was just being lazy too!!! Dont get me wrong, some days are ok and i get things done but other days are terrible. Thanks for listening. :)
wendyanne said:
Feret,
Exhaustion is one of the worst things about Chiari. I didn't know for years that it made you tired. I thought I was just lazy and I beat myself up a lot over it. I drink big cups of coffee when I have to do anything to try and combat it.
Wendy
Definatley feeling the same way, I am so exhausted, I literally cry when I have to go to work. My body is just so tired and doesnt want to go on. I too thought I was just lazy but I know it cant be that. I can sleep for 12 hours then be awake for 2 hours and need a nap. I hate coffee so I have been living on caffine pills. What a horrible thing to deal with :(
I know exactly how you feel. but the naps arent normal naps… im out for the count! My husband tries to wake me up several times in the day amd he cant manage it! (Lol and he doesnt wanna throw cold water to wake me!)
Do you find it especially hard when you have been ill with something else?? I had tonsillitis 3 months ago and it took a month of sleep to get over it. its so bad that just standing up for a shower is so exhausting!
When are you having surgery?? Xx
I am ringing tomorrow to find out more information. I am fighting a cold also, so I feel really bad! Work just don’t understand. Thanks for listening and replying. Love this site. Cheers 
Exhausted, yes. I thought at first it was because of all the things I had going on in my life - work, school, volunteering, starting my own business, the wedding, my sister's wedding... Then I got sicker and sicker until one day my world was turned upside down. My driving and work privileges have been revoked. Even with nothing to do all day long I still sleep a lot and feel tired all the time. Still waiting to see a neurologist or neurosurgeon. At this point, all I can do is nap, nap, nap.
I have been feeling such guilt do to this.. It help's to know it's part of this condition..
I kept pushing and pushing myself and endd up in the hospital for a week. I can't work due to a car accident and then a failed surgery in 2006. I was at least able to do my grocery shopping run errands etc.
Now I am basically going from my room to the couch, when I do have a better day I try really hard to catch up..but feel like I can't catch up no matter how hard I try..
I want to do things but for some reason after spending the week in the hospital I find that I get very anxious now when I have to go out and drive myself. I am a single Mom and it's so hard not being as active for my son's sake!
Has anyone felt this type of guilt or anxiety or is it my dog gone brain playing tricks on me?
Thank you for sharing your syptoms, it's sure helping me to get a better understanding about this!
My surgery is set for Aug 13Th after I set the day, I can't sleep through the night and have bad dreams is this normal too?
Deb
Yes, yes, yes. I'm also confined to moving from the bed to the couch. On good days i can sit at my computer desk for an hour or so. I feel so guilty that I can't keep up with the house work, etc. I was just married in September of last year - I'm still a newlywed. My husband shouldn't have to do everything on his own, in addition to taking care of me, and working full time. I am overwhelmed with guilt and anxiety.
I hope things get better for you. You're not alone...
Katrina W.
DLM said:
I have been feeling such guilt do to this.. It help's to know it's part of this condition..
I kept pushing and pushing myself and endd up in the hospital for a week. I can't work due to a car accident and then a failed surgery in 2006. I was at least able to do my grocery shopping run errands etc.
Now I am basically going from my room to the couch, when I do have a better day I try really hard to catch up..but feel like I can't catch up no matter how hard I try..
I want to do things but for some reason after spending the week in the hospital I find that I get very anxious now when I have to go out and drive myself. I am a single Mom and it's so hard not being as active for my son's sake!
Has anyone felt this type of guilt or anxiety or is it my dog gone brain playing tricks on me?
Thank you for sharing your syptoms, it's sure helping me to get a better understanding about this!
My surgery is set for Aug 13Th after I set the day, I can't sleep through the night and have bad dreams is this normal too?
Deb
yes i get so tired very easy too. i tried to make it to church this morning but after my shower i was to tired to put on my shoes and went back to bed. i am trying to new kinds of vit which is suppose to help with energy so i'll see if they work.
I can say you are not alone. I have to push myself everyday to make it to the end. Some days are easy others are just horrible lol.
Thank you Katrina,
You don't know how much your reply helped!
I was starting to wonder if something else was wrong with me, I was on the go at all times before this and now taking a shower, cooking dinner wipes me out...
The guilt is overwhelming and I feel like I am letting my son down, he's been amazing with helping me out. It feels as if i'm at war with myself? body say's go but my brain say's no way? Then I stress about everything i'm not doing?
I have to drive to Denver next week for all my Pre Op testing and a sleep study and it's a 3.5 hr drive, some how I always make it and also feel a bit better at the lower altitude...
Thank You again for sharing, now maybe I can let go og the stress and get through the next few weeks before surgery..
Debbie
7thhousedoula said:
Yes, yes, yes. I'm also confined to moving from the bed to the couch. On good days i can sit at my computer desk for an hour or so. I feel so guilty that I can't keep up with the house work, etc. I was just married in September of last year - I'm still a newlywed. My husband shouldn't have to do everything on his own, in addition to taking care of me, and working full time. I am overwhelmed with guilt and anxiety.
I hope things get better for you. You're not alone...
Katrina W.
DLM said:I have been feeling such guilt do to this.. It help's to know it's part of this condition..
I kept pushing and pushing myself and endd up in the hospital for a week. I can't work due to a car accident and then a failed surgery in 2006. I was at least able to do my grocery shopping run errands etc.
Now I am basically going from my room to the couch, when I do have a better day I try really hard to catch up..but feel like I can't catch up no matter how hard I try..
I want to do things but for some reason after spending the week in the hospital I find that I get very anxious now when I have to go out and drive myself. I am a single Mom and it's so hard not being as active for my son's sake!
Has anyone felt this type of guilt or anxiety or is it my dog gone brain playing tricks on me?
Thank you for sharing your syptoms, it's sure helping me to get a better understanding about this!
My surgery is set for Aug 13Th after I set the day, I can't sleep through the night and have bad dreams is this normal too?
Deb
Fatigue is one of my worst symptoms. I am trying to work full time and it is killing me. I feel exhausted all the time. My poor house looks terrible. I know my husband is frustrated but after working all day I can only manage the chores that need done like dinner, dishes, laundry, and the bathroom. Dust and clutter just keeps getting pushed aside.
My house looks like a bomb has gone off in it too!!! I feel so guilty cause my hubby is doing everything, working full time, cooking, washing and everything else. I want to help but after work I’m so tired. My kids are wonderful too, helping when they can. Any way, the family will remember not that the house was a mess but the time spent with their mum. I hope this makes you feel a bit better??? Cheers
I've went from being a one woman wrecking crew to barely being able to function. The fatigue is crushing.