Well the time has almost arrived for me to go for my occipital neurostimulator trial on April 16 and I am really nervous about the whole thing, I also go for a long over due sleep study the same week to finally deal with my insomnia. What makes me nervous about the stimulator is whether it is gonna work for the pain and if so what about the pressure. After the sleep study I follow up with the cardiologist. As I stated in a previous post they found I have mitral valve regurgitation, an arrhythmia, a stretched right ventricle and palpitations. Last night after finally getting to sleep I was awakened by severe cramping in my left arm with tingling in my hand and it was ice cold, when I stood up my left leg wanted to give out. Has anyone else had this problem. I have had Charlie horses in my calves constantly lately and my lab tests are normal except my B12 which I just found out from the rheumatologist who says I have to see my PCP about. Could the low B12 be causing all these problems? My husband wants me to go to ER but I am tired of being treated like I am crazy.
Abby the rheumatologist said since I am not double jointed that I do not have ehlers danlos, they did tilt table and it was negative. When I ask my physicians about these things they treat me like I am crazy and tell me to stay off the internet as if I am making things up looking for problems. I suffer from a majority of the things on the list you posted above.