I have a bit of a strange question. I’m wondering if anyone has had to deal with all of their joints suddenly feeling like they were being ripped apart from the inside? My GP thought at first I may have developed rheumatoid arthritis or gout, but all of my bloodwork came back normal. Mom not talking about sprained ankle type pain either, I mean serious, laid on the couch immobile, shafts of white-hot flames running down my arms and legs, tears streaming down my face pain. The only thing that didn’t hurt were my face, hands and feet, and they all tingle. Thankfully I’ve been under a pain level 6 yesterday and only a 4 today, but I’m hoping for some guidance, cause the entire clinic up here is stumped and the hospital staff keep looking at me like I’m either insane or a drug addict.
Thank you. Honestly, I don’t know if I have EDS, no one’s ever suggested it. Both the NS and NL I had seen brushed me off because my herniation is “only 5mm.” The NS diagnosed me with chronic migraines and put me on topiramate, then told me not to come back unless I have something major happen. I’m hoping that if I present my GP with some information and possible conditions she’ll be able to either run tests or rule them out.
I hate being grumpy with my family, which is what the hurt does, and just want to figure it out so I can go back to being productive.
Google the Brighton test and the Beighton test. These are the acceptable alternative to the expensive genetic test for hypermobility/EDS. If you score high you can take that to your PCP. Rheumatologists are a good specialty to discuss the EDS with.