Hi my name is Naomi and My surg is sch for5/24 so it’s coming fast and i’m getting confused about some things as it’s coming. I’m hoping people with experience with EDS and POTS can help enlighten me. Thank you
#1 A surgeon I met with suspects I have eds. She said the diagnosis will take a while to meet with a geneticist and when she suspects EDS she closes with that in mind. What is the proper term she is referring to? She is not doing my surgery so I am not in contact with her. But if I have EDS what is done different with my surgery?
#2 The POTS that I thought was becuase of Chiari and all the pressure in my head… it may be related to EDS and not go away with surgery?