Hi everyone. Hope everyone is doing well and thank you all for the warm welcome. I'm so sorry I have not been active. Just been busy with cooties going around and the holidays. And I just found out that I have some cervical disc issues that will prob need surgery. A couple of bulging discs with an anular tear and a herniation with retrolithesis. C4/c5, c5/c6 &c6/c7 are all involved. That's not my question though, lol. I have a lot of stomach issues and I see a lot of things on here about EDS. Could someone kinda tell me what it is in a nutshell. I'm wondering if I should be checked for that. On a side note , I also have a rare congenital heart defect called Ebsteins Anomaly/Malformation. Thanks :-)
Thanks Emmaline. I knew it prob would be lol. Thanks for the link. I looked it up earlier and I do have some of the characteristics of EDS (joint hypermobility being one) so I just wanted to see if I could learn more about it. Thanks again!
You can look up the Brighton criteria and the Beighton criteria to get an idea of how its diagnosed.
These are great videos too about EDS and CCI
cSFinfo.org
Videos
Greater metropolitan area
Anything with EDS and CCI
Side note * not everyone with EDS had sought skin and the actual hypermobility of joints can lessen over time as we age.
Jenn