Hi everyone. Just came back from surgeon. My sons surgery from 5/12 was not successful. He healed very well and post op MRI great. Now 6 months later the syrinx has grown in size. Surgeon says we have to go through surgery again. Possible scar formation because he is growing so fast. Now he wants to put a patch in. Does anyone have any insight, feedback or experience with this. Help! Thanks everyone
Do you know who I can speak to about getting more information and options. We are freaking out and now just second guessing everything. Thank you so much.