I take my daughter to the headache center today. She has a lot of headaches. They are dull and achy, mostly in the front. The NL says that she has migraines. They are not throbbing like mine are. She does not get nauseated or vomit like me. And she can have a headache and still play on her DS. I am telling the NL that she is not having a true migraine. He tells me that she is having migraines based on criteria from blah, blah, blah.
He gives my daughter a neurological test and says that for the most part everything is fine. Then he tells me that the only thing that gives him concern is that she is considered hypermobility 1. So, I say "She has EDS". He tells me, "No EDS is an overused term cause people who are told that they have EDS do not truly have EDS... [Okayyyyyyy] . So when I question the Brighton and the other test and advised him that she should be tested for EDS before it is dismissed, he gets rather agitated. He wants to increase her Amtriptyline to 75 mg a day to prevent migraines or at least decrease them to about 1 or 2 a month.And tells me to give her advil and aleve for breakthrough pain. Now, she already takes 600 mg of Advil at least 3 times a week. She started out on Aleve for her RA and it did absolutely nothing.
Se has already told all of her doctors that the only medicine that takes a way all of her pain is oxycodone. the NL tells her that oxycodone is basically being removed from the pharmaceutical industry because it is ineffective in helping the body deal with pain. As John Pinette would say, I say nay nay. Oxycodone is NOT being removed from the shelves because opiates mute the pain receptors, but hey what do I know, right?
So, after telling him that she has major body pain that needs oxycodone, he then tells me that she should see the pain management people. And wouldn't you know it, the pain mgmt clinic is the one that referred her to the headache center.