How many of you have been diagnosed with Scoliosis?

Scoliosis, an abnormal curvature of the spine, is found in as many as 30% of Chiari patients and 60% of syringomyelia patients. (from www.conquer chiari) I was diagnosed today as having scoliosis in the mid to lower part of my back. It is making my right hip higher than my left.

What do you know about Scoliosis?

hi Abby:

I too have scoliosis …I think it is common , like you said for us Chiarians. I think after my decompression …my curve has gotten better,…however, i have no way of really knowing how much better…b/c measurments were not taken.

I hope you are well…does the scoliosis cause you pain??? Mine is a thorasic curve and my hips and shoulder blades are uneven .

as far as i know i dont, i do have a hansh unsure if spelt right, i hope you get what im trying to spell, my brain has gone to mush at the moment…lol

I have RotoScoliosis (Curve & twist) of the spine.Also have what is called a flat back above where my rotoscoliosis starts.

Last year I had pneumonia. The doctor commented on my very impressive scoliosis. I said "Me, that is not my x-ray!"

I had developed this curvature in the past two years. Now my back looks like a question mark, my headaches are horrible and I am much more dizzy and I seem to always be running into the walls. I am afraid I may be developing a syrinx. I have a lot of nausea and my fine motor skills are going south. I cannot lay flat without great suffering. I will have new insurance in July and I will be going to Orlando to see a Chairi specialist. Here in Jacksonville I have not been able to find anyone that knows anything about Chairi. Even Mayo did not offer any real answer when I saw them about 15 years ago. This is very frustrating for me. I am a nurse and I cannot seem to secure any answers. I take zomig and 3 tylenol almost daily with minimal benefit.


I also developed scoliosis later in life (early twenties). I found out that chiari and its physical stress on my brain had introduced a high level of tone into my trunk that caused my muscles to pull me into a scoliosis position in my lumbar spine. I have done a number of tone reducing exercises and some dural stretches and no longer have a scoliosis on x-ray. My back pain is greatly reduced though I am still working through the dural stretches as have not gone through the full regime. Takes time!

I had a curvature of roughly 60% in my thoracic spine. I’m now fused from my T3-L3. Found out I had Chiari just before my scoliosis surgery. Scoliosis is much better, but still suffering from other symptoms.