Lori Hackett-Shanks said…
Running on 7hrs sleep in the last 48hrs :( Had to drive all day today for work and my head hurt so bad (it was like dragging a dull knife into a raw chuck roast) the pain ran all down the right side of my neck and head into my jaw, ear and up the side of my head - ouch!!!! Actually thought about going to the ER but decided not to due to the fact that one of my best friends from h.s. mom passed away and then had a school Spring Fling to attend. No time to be sick today!! In short an ER doctor found my chiari almost 2yrs ago and I was sent to a N.S. he spent all of 5 min with me to tell me to return in 2 yrs for a follow up MRI. My symptoms got worse at 1.5yrs (thought I was having a stroke). Returned to the N.S. who tells me he can't do anything for my headaches to see a neurologist - I remind him that I had an MRI he looks at it tells me the chiari is better and come back in a yr. The office nurse calls me and tells me I have a pituitary tumor and to come back in 6 mo. which the neurologist tells me its a cyst guess its been there for 2 yrs also (N.S. didn't tell me this the on the first visit). In between all of this I asked for the radiologist reports which I find lots of info that no one told me!!! The neurologist says all the symptoms that I checked off of the chiari symptom list and made little notes on means nothing - that the symptoms I have are due to lack of sleep not my chiari - hmmmm - so I have an appointment to see another doctor for a sleep study and have been put on 900mg of gabapentin daily for the headaches. I know its early in the game but does this get better - God Bless You Crystal (Thank you for all your input)!!!!! I also have a mental health diagnosis but that doctor now says its neuro not mental - I think any neuro at this time would cause a mental (lol)!!! I live in central Illinois and my resources are very limited, I'm not afraid to go out on a limb to try to get the help I need just kinda lost and feel lost in the system. I realize that symptoms of one thing could be another but when does the merry go round end??