Hi! Has anyone had a occipital nerve stimulator? Pros/Cons? I’ve had intractable migraines since a seizure in Oct. and my pots has been bad as well. Only time it went away was 2 weeks after I had the DHE protocol in the hospital. Thank you!
In the USA, ONS is still considered experimental by most insurers. You want to be sure they do a trial for at least a week before implanting anything. As you know Occipital nerve stimulation (ONS) for headache and craniofacial pain is not FDA-approved and thus represents an off-label use of this technology. You want to make SURE it works for you before spending the big bucks.
The other option you may want to consider is there are several trials going on. I believe this one is still recruiting (although I think its in Cali.There are likley others. If you you can find one it will save you 60 grand:
ClinicalTrials.gov identifier: NCT01775735
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Thank you for the information but I’m not quite sure what you mean. My insurance does cover it, already had my visit and yes I am having the week trial to make sure it works. Since I’m going to the Cleveland Clinic which is in my network, my insurance already approved it. I was just asking if anyone had one and how did it work for them?
Its technology although its been around a while that is not available to most of our members because of its experimental nature. There are ways to access it besides paying out of pocket. You are fortunate that your insurance approved it and I hope it works for you. There are several hundred peope that have read this thread so far also looking for information.......