So I saw the ns that my Dr referred me to. She said I should think about surgery because of my symptoms and my Chiari is not insignificant. She didn’t order a cine MRi or even a spinal MRI. She said I didn’t have a syrinx from the MRI of my neck. I am wondering if it would always be in the neck or could it be lower.
I also asked her about EDS and she said she doesn’t do that and to have my PCP look into that if I want. I asked if I have it, if it could affect my surgery and she said no.
Kinda disappointed.