My baby Paige

I just dont understand this whole chairi type 1 thing. Shes 13 months old, diagnosed with chiari on jan 13th, 2012. She also has sleep and awake apnea, severe reflux..allergic to mostly everything. Shes on infant elecare formula with some beechnut rice. Recently shes been pulling at her hair, puking most feeds. wakes up screaming, doesnt nap well. And today makes things worse..I was walking my 4 year odl to the bustop to put her on the bus with my 2 1/2 son and Paige, Paige started like getting motion sickness in the stroller, and she did this when I went to pick my finacee up from school..she was screaming, pulling at her hair, chocking, gagging and then pukes..Do you thinks something is going wrong? She sees her pulmnary dr tomm at the same hospital she see the neurolgist and neurosurgeon at? Please help ... Most of the time paige sleep with me just to make her comfortable. Also shes on meds for her reflux and on a sleep apnea montior when sleeping...