Hello everyone! my 5 yaer old daughter went to the dr. for head achs and after a ct and a mri we were told she had chiari type 1 the dr told me dont worrie nothing is wrong with her and that its not a "big deal" the dr knows nothing about it and just tells me to come pick up some papers on it from her office and that she will have a neurologist call me to set an appt! i have not been able to sleep for days now because all the questions i have and they are left with no answers! all i can do is google chiari but every case is different so i still have no answers! i am so scared! i worrie if she has to have surgary!
thank you so much! it is so scary to be told that your daughter has a condition and then to be left with no answers! i try not to talk about it around her and i try to not let it show that im worried! i hate to google it because now i keeping thinking of everything she does and if it has to do with chiari! when she was a baby she alway would puke and her doc just figured she had a sensative tummy and now that she is older she gags every morning like she is going to puke but its just gaging and she recently started complaining about her back and has been moody and depresed alway getting upset for no reason i figured she was mommas drama queen! but now it makes me worrie everything she does!