I've been thinking since my last apt with nl. Why does she talk about chiari in apts but in the mychart thing online and the copy that her nurse handed me in the apt says cyst of brain? Also one of the major complaints she has listed is anxiety? I have never mentioned anxiety with her and of course I'd be anxious and gittery concerning all of this..They run me around worse than the Navy ever did!?!?
I hate it when the doctors attribute our symptoms with anxiety. Its like just because we have something rare that they are uneducated about that means we have mental problems or anxiety. Granted, I do suffer from depression, but it is well controlled. That had nothing to do with the headaches, tinglings, memory problems, etc. UGGGGHHH!!! I am so with you Big Red!!
I think that the nl here is thinking that because i've also been diagnosed with ptsd from service. Her office was not happy yesterday when I requested a copy of all records for Mayo. I went through the mychart again and no where does she have chiari, in my ns forms chiari is mentioned along with the mri and the flow study... and she's a specialist? I do have a question. I have my apts starting up at mayo the 16th-22th but also have apts with the idiot nl and the ns on the 8th of may....should i still keep those apts or say you screwed with me for the the last time.
i dont know i tell ya i had to actually write a letter not once but TWICE to get the PROPER information INTO mychart! and they have total lack of ability to keep PROPER RECORDS!!....excuse my language--hasnt been a good day
I think it was a crappy day all around yesterday Lisa. It is amazing how they keep charts. I am afraid to see the ns records lol
Red,
This has happened to me more times than I can count. I'm dealling with a situation right now. I walked out on a neurologist recomended by my surgeon because he was dismissive and abusive and he told my surgeon that I wasn't a good candidate for surgery. So I now have to go see her again and convince her to operate on me!
I wouldn't give them the oppurtunity to do that to you again. I would just "postpone" the appointment until you go to the Mayo. Don't burn the bridge just yet but cancel the next appointment. It's so frustrating that doctors because of their own ignorence are so dismissive.
Ok. So they cannot hold it against me if I postpone. I'm so frustrated with this entire thing right now. Hoping for best but expecting the worst. I know that there isn't a cure but if i can just be able to live my life in peace and not be in pain constantly is that to much to ask.
Not too much to ask, but apparently more than you can expect. :) I head hurts so bad some days I can't even see straight. I do hope you find that though!!! I hope we all can some day!
That would be nice some day