I honestly feel like people dont understand what i go through. I had surgery back in march of this year and starting back in August ive been having my syptoms come back the horrble pain in my head and neck pain i wouldnt wish upon any body and now my surgeon thinks i need to get surgery again i most likely need more space and i also now have two small herniated disks in my neck… Has that ever happened to anyone after surgery or have to get surgery over again? Its hard for me to work and i usually have to go home…
Hi Alexis! I’m sorry you’re going through this! I haven’t had surgery (yet) but my neurosurgeon has a webinar he requires his patients to watch before their first visit. I’ve watched it like five times! He does mention in his webinar that there are times where sometimes they have to go back in because they didn’t remove enough bone, or sometimes they remove too much and have to go back and add.
I would also do lots and lots of research and familiarize yourself with how good your surgeon is and maybe get a second opinion. My neurologist was very open with me about the 2 neurosurgeons I saw and referred me to a 3rd one who really does specialize in Chiari.
It may be worth the drive if you’ve got to go outside of your city to find what/who you need.
Good luck and hugs and prayers from Houston!
Thank for your reply im just starting to do more research on chiari and finding out some people have multiple surgeries… I wish you luck and a speedy recovery with no problems