I had my preop yesterday and they called me this morning to confirm my surgery date June 2nd! I have such a sense of relief and feel like I’m that much closer to feeling better! It feels kind of strange to be so excited to have surgery but thinking of how I may go back to some form of normalcy is fabulous! My entire family was jumping with joy when we got the call with the confirmed date it was as if we hit the lottery lol! I feel like I have been extremely Blessed to have been able to get to this point in five months from originally being diagnosed. I pray that others can find the information they need to help guide them to get the answers they need. When I first signed up here I learned that the first thing I needed to do was find a chiari specialist and that was exactly what I did. Everything fell in place from there I continued educating myself and asking questions here and got the best advice I could ask for. Omg omg omg I really have a surgery date I’m still in shock. I’m sure I will go through different emotions because of course I’m scared too. We’ll I wanted to let everyone know that have been helping me through this journey and those seeking info! I know I have a long way to go but it feels good to at least gotten this far. I never knew five months could feel like years. Time goes by slowly when you’re waiting for appts, tests then results… Thank you my chiari family! I know I will be asking for more advice when this soaks in a little more but I wanted to let you guys know ASAP about the news! Thanks for listening and I’ll continue to keep you posted! Also any post op info as far as what to expect and things I will need to get for home will be greatly appreciated! Alrighty thanks and take care!
Very best wishes to you on your upcoming surgery. I hope you get the best possible outcome. Keep us posted, Lili.
Thank you for the encouraging words Dancermom and Abby I really appreciate it! Wishes for a beautiful day take care!
I'm very excited for you! I can't wait to see what improves. I'll be right there with you when you wake up. Love you. Finally on the chiari site. :) xoxo 2 week count down.
My surgery is June 2nd as well 6:30am :) Good luck to you hun <3 Ill add you to my prayer list.. you are going in with the right attitude :)
Best wishes to you! :)
Thank you for the wonderful wishes Rellieb (my oldest daughter), Shellybelly0930, Anglyn, and Nykki! Rellieb I really appreciate your support and you being here for me I love you too! It’s great that you joined because you’re going to get a lot of support and you can update my chiari family after surgery until I’m able to post! Omg Shellybelly0930 we have the same surgery date so we must be having somewhat of the same nervousness yet also excitement as we count down the days! Best wishes to you! Thank you Anglyn you have been so much help to me and many others there’s not enough words for the appreciation I feel! Nykki thank you for your kind words! I’m sorry to hear you have been suffering with symptoms for 28 years that’s a very long time I pray you get your surgery date soon! Im 37 also have been having symptoms since 2006, but I also have lupus, Sjögren’s, and RA. It’s hard for me to tell what symptom goes with what at times since some of them are similar. Although some symptoms I feel like I know are the chiari. I am hoping for many of my symptoms to be relieved after the surgery of course! I’m glad your able to get in to see a chiari specialist it’s worth the wait if you can wait! Let us know when you get a surgery date. Take care everyone and thanks again!