After 2 years of misery, running from doc to doc, my daughter suffering 24/7 pain, endless drugs and nutty "treatments", insane diagnosis (like me having Munchausen), etc,...etc,...
My daughter finally had decompression surgery on Nov. 20. CSF flow has been restored an she has been recovering well. Often, headache comes on near the end of the day, especially later the school week as she just gets so exhausted...but she's better. SO MUCH BETTER.
Although there will certainly be more bumps in the road and symptoms along the way, 75% of her waking hours are now PAIN FREE!
AND she's found something that seemed lost forever: HOPE!!!!!
There is hope :)