hello again all its been quite sometime since i been here actually i can not remember when i was here last..
life sort of took over- since being here i have met in person a fellow chiarian which is really nice to meet someone else in person who has the same condition i have, I am sure some of you know what i mean. Not an awful lot has changed with me medically well i guess that is still correct- lol-
I am in still pain management but am getting frustrated with the lack of continuation of "healing" and the lets continue the drug route- i want to see some progression, and i am feeling quite frustrated with not seeing that in pain management. they have in the past given me some steroid shots some of which helped others that had not helped and have made things worse. i continued on this avenue with pain management without a neurologist but continued on my search for one who actually understood both chiari and hydrocephalus and just when i thought maybe i would not find one within this state, i went back to my insurance companies website and matched it with the reccomended hydrocephalus neurologist boards site and low and behold i found one, i researched him and i was lucky to find one, made an appointment with him and granted he was a little confused as to why i was there-after explanation- he was really of great insight to me and of great help- he has given me some great hope for the future. He has also explained some things to me that up until this point have been totally ignored by all other neurologists and neurosurgeons OTHER then the one who done my Decompresson, so it is Confirmed I do infact have cervical stenosis. I do still have issues with the shunt, air pressures really cause me problems so i still havent come to a happy medium with that. And I do still have problem with my left shoulder and my neck still bothers me (which is what pain manahement is suppose to be helping with) And i do still suffer with tremors,confusion, tiredness. I lost my ability to do craftying the way i use to do,so when my eyes and hands cooperate with each other i try to do something simple.
on the family side of things: in June we went back home (drove) and hit a deer (darn animals) but made it there; my 2nd youngest son graduated high school! got van fixed thankfully insurance didnt total the van weewh dodged that bullet. In October my step daughter got married- her and her husband bought a beaautiful home in the burbs..lol..a bit to close to the MIL if you ask me but atleast she isnt my MIL haha ;)
other then that- life is a journey i continue to walk some days slower then others, and some days just a bit more confused..yet a walk i make slowly hopefully with steady hands! haha ;) hope you all are well... take care..Lisa