I knew things were progressing from my last MRI done. Now my neurologist which I officially say is a quack now. First off sent me to duke cancer center a brain tumor doctor that has only studied CM well the doctor there does another MRI that stated my CM has fallen more since the MRI my reg neuro done. Instead of surgery he recommends me to go back to the neuro that referred me and just monitor it. The reg neuro is shocked by the 2.8 extra drop from the before MRI and says he knows nothing else to do he doesn't specialize in CM took me off the medicine and tries to refer me to a different doc only to find out they don't accept my insurance. My doc calls me back says I will have to find one but my insurance needs a referral from the reg doctor or they wont pay. Trouble finding a doctor nearby that will help me out. One its still not a really known problem. Second I'm feeling the side effects more. Today its been worse. I am still going to college every day as the day progresses I develop a pressure in my neck and back of head it takes all my strength to make it through half the day there. I have 2 classes upstairs/elevator I went up stairs first time got lightheaded halfway thought for sure I was going to pass out or fall I stopped and tried to calm down from the body reactions. I managed up the stairs to my class only to fail a quiz cause I couldn't concentrate. I really don't know if I can finish with a passing grade if this can't be fixed :(
I decided being I almost fell coming up steps to ride the elevator down. I don't know which was worse or if it could make it worse you know how when a elevator stops how it feels like it pulls your body down if not. Let me say this it felt like it was pulling more pressure into my neck and it gave me a terrible migraine. All I felt today was a migraine standing up made me feel like my whole body was shaking from standing up. It scares me to know its taking so much just to stand up for the last week i have had a episode of this at least 5 out of 7 days where I couldn't take care of my kids. I feel like it has started to cripple me and all doctors here say that the size of herniation is what matters and try to say that until it is 10mm it doesnt affect a person...Are they crazy? I'm not imagining this and my parents are honestly tired of taking care of their 22 yr old and my kids. What will happen when my parents are no longer able to help me and my kids when I have the episodes... Is it wrong that I want a doc to at least try the surgery that has a small chance of helping. Even though they say the surgery is too invasive why do I have a feeling it could still be worth the odds to me its a 50/50 it may and may not help to the docs they use the odds of how it could hurt me by a mistake they may or may not make:/ Just tired of the pains and troubles CM has cursed me with.