So I just go back from my appointment with a local NS who actually has experience with Chiari's this doctor not only has done this surgery many times but quite a bit this year. For the 1st time since I was diagnosed 3 years ago did some pull out my MRI and explained everything to me. Apparently it is putting a lot of pressure on my brainstem I can't remember the exact term he used but you could see some damage on it. Also it is blocking my CSF significantly enough he could tell that off of just my MRI with contrast. He didn't think there was anything that would help but surgery. He was surprised my other symptoms haven't been worst before this year.
Now I need to talk to my family and figure out when to do the surgery, he said I should be ok to make it to the new year if I could deal with the symptoms. But I did need surgery.
I’m glad to hear that there is another NS who understands Chiari!